Caleb had his TWO year post transplant testing done at Texas Children's Hospital. Whenever we go back there, he is a little celebrity! He got to see most of his favorite nurses. And of course we got to hang out with our Elmore family! Once again, they went above and beyond to make us comfy and spoil Caleb rotten. I kept telling them that we would have to bring him down from his cloud and back to reality when we got back to Wisconsin! Our time is always too short when we go back!
We really don't have any results back yet. Although the ones we do have back have been great! The pulmonologist there feels like Caleb does NOT need his steroid inhaler and feels that it may be contributing
to his lack of growing (he's 39 pounds, and 44 inches), and hindering
his adrenal glands from "waking up." He does not feel that the inhaler
is helping his pulmonary function/tests at all. Caleb is on an adult
dose of this inhaler, and his doctor immediately cut the dose in half.
We will go down to the lower dosing in 2 weeks, and then hopefully off 2
weeks after that. I am praying he is right and I am praying that his
pulmonologist here will be on board with this plan....
His chest
CT has not changed in 2.5 years, which on one hand is good because it
shows his lungs have not gotten worse after getting high doses of
chemotherapy and look okay after having pulmonary hypertension. But not
so good on the other hand, because they are not getting better. His
treadmill testing done in July basically showed that his lungs work
extremely poorly. However, he seems to compensate well. His "numbers"
amazed his doctors. Can he keep up playing tag or soccer, no. But can
he sprint the bases in baseball, YES!!
Here's a few pictures from our trip!
He wanted to bring Ellie flowers, so he picked out 13 roses for her! I can't remember the name of the player, but apparently he has a favorite baseball player who is number 13....
Some of his very favorite girls!
A trip to TCH is never complete until he gets to play with the trains!
A trip to the Houston Children's Museum. Showing how his strength!
Dinner date with Ellie and Jake. So much fun!