Texas Trip...Medical stuff!

We were at Texas Children's WAY more than I thought we would be while we were in Texas.  We had a full day on Monday...8-5.  Caleb was a trooper though.  It's a little sad that he is so used to being at the hospital.  He's so good and easily entertained most of the time.

Back at the old stomping ground...TCH BMT waiting room.  Playing the Wii 

 

Enjoying the view from the 21st floor while getting an EKG done

 

 

Showing off his little booty before his skeletal scan

 

Thank goodness for the Ipad!!

 

He only had one test on Tuesday, but they forgot to order the medication they needed to inject him with.  So a test that normally takes 4 hours, took nearly 7.  But, but it gave us time to go and find his favorite nurses that have taken jobs in other areas in the hospital.  He was SO excited to see them!

Miss Alex

 

Miss Sherryl

 

 

 

Miss Holly, his true love.  She actually works a different hospital now, but is still in the "Medical District", so it was only a short walk down the street to track her down!

 

Of course we had to stop a few times to run the trains

 

And Wednesday we went back to go over most of Caleb's results.  I don't have everything back yet, but most of his results were "excellent." One concern was that his IgG (antibody) level was low. TCH's "threshold" is much higher than our clinic here in WI. (So it was still in the normal range for our hospital here, but in Texas he would have needed another IVIG infusion.) There was much discussion about whether or not he could start his vaccinations. It was decided to give him one in hopes that it will kick start his antibody production. They warned me that his body probably isn't ready yet. Kind of a bummer, but if this is the only "issue" from all of his testing we should be singing praises. I was really hoping he would have some protection before starting school though. He will have blood drawn in one month to check if the vaccine he was given was successful. If not, we have to wait 3 more months and they will give it to him again. They also did not want to drop any of his medications yet.

The heart/lung doctor was extremely impressed with how well C is doing. His echocardiogram looked good and the doctor was very happy to hear that Caleb is doing well with the medication wean. He only has one more week left of one of his heart medications! His lung studies continue to show "obstruction," but it's not worse. This doctor also feels Caleb doesn't need to be on his steroid inhaler...I am hoping they agree in WI!

And the man behind it all, Dr Krance!!  Love this man!

 

We will be forever grateful for the great medical care and support we were given at Texas Children's Hospital!!